Collaborating for Care: Cook Children’s joins Sturge-Weber Syndrome Clinical Care Network


Sturge-Weber syndrome (SWS) is a rare and sporadic neurocutaneous disorder that classically includes facial port-wine stain in the distribution of the trigeminal nerve and abnormal blood vessels in the brain (leptomeningeal angiomatosis). Occurring in 1 per 20,000-50,000 people, patients with this condition often have multisystem involvement, including epilepsy, stroke-like episodes, weakness, visual problems (glaucoma, vision … Continue reading Collaborating for Care: Cook Children’s joins Sturge-Weber Syndrome Clinical Care Network

Spotlight on Neuroscience Research


Research is an integral part to any successful program and the Jane and John Justin Neurosciences Center continues to be a leader in many areas. We currently participate in 28 sponsored and investigator-initiated trials. These bring innovative treatments to the children of our region which otherwise would not be available, including cannabidiol and fenfluramine for … Continue reading Spotlight on Neuroscience Research