Dravet Syndrome Foundation Family and Professional Conference


Cook Children’s Jane and John Justin Neurosciences Center is pleased to welcome those committed to improving the lives of those with Dravet syndrome – including families, caregivers, clinicians, researchers and industry professionals – to Fort Worth on June 18-20, 2020 for the fifth biennial Family and Professional Conference. This three-day event features a professional education … Continue reading Dravet Syndrome Foundation Family and Professional Conference

Ensuring Quality Care for Adults With Rare Genetic Epilepsies


As recently as 10 years ago, many patients with difficult to control epilepsy syndromes – such as Lennox Gastaut Syndrome – had no explanation for the cause of their epilepsy. Worse than not knowing the cause, disorders such as Lennox Gastaut and other rare epilepsies had almost no treatments specifically studied for them and research … Continue reading Ensuring Quality Care for Adults With Rare Genetic Epilepsies