Collaborating for Care: Cook Children’s joins Sturge-Weber Syndrome Clinical Care Network


Sturge-Weber syndrome (SWS) is a rare and sporadic neurocutaneous disorder that classically includes facial port-wine stain in the distribution of the trigeminal nerve and abnormal blood vessels in the brain (leptomeningeal angiomatosis). Occurring in 1 per 20,000-50,000 people, patients with this condition often have multisystem involvement, including epilepsy, stroke-like episodes, weakness, visual problems (glaucoma, vision … Continue reading Collaborating for Care: Cook Children’s joins Sturge-Weber Syndrome Clinical Care Network

Collaborating to Improve Pediatric Epilepsy Surgery


Intractable epilepsy (failure to achieve seizure freedom after trials of two appropriate chosen and dosed antiepileptic drugs) has profound impact on quality of life, psychosocial function, cognitive function, and mortality risk1. For these patients, surgical therapy, consisting of localization and subsequent resection/ablation of the epileptogenic zone can result in favorable seizure reduction and for many, … Continue reading Collaborating to Improve Pediatric Epilepsy Surgery